Three-year-old Chloe's cancer story inspires fundraising run
PUBLISHED: 08:07 19 May 2018 | UPDATED: 08:07 19 May 2018
She looks like an ordinary three-year-old, but Chloe Donlevy has a one-in-a-million form of cancer.
Her story has touched the hearts of her dad’s colleagues so much that they took on a 10k run to raise money for a charity which could fund new treatment for Chloe.
The youngster lives in Lakenham, Norwich, with her mum Clare, dad Nick and nine-year-old sister.
At just four-months-old she was diagnosed with Langerhans cell histiocytosis (LCH), a rare type of cancer with a range of different manifestations. Initially, the condition was only in the bone of Chloe’s skull and in her skin, which was treatable with chemotherapy.
Shortly after the disease spread to Chloe’s bone marrow, liver and spleen where she had to begin heavy chemotherapy and ended up spending her first birthday in hospital. Doctors suggested an experimental treatment option available and Chloe was given an inhibitor for six which worked very well. However once she stopped taking it as planned, her symptoms came back almost immediately.
Chloe now continues to take the inhibitor drug which will keep her well while she waits for a new plan.
The inhibitor has some potentially dangerous long-term side effects which is why it is important for funds to be raised for Histio UK, the only charity dedicated to finding a real cure so that Chloe and others like her can beat the disease for good.
The runners who took to the North Norfolk Coastal Path work with Chloe’s dad at the Norwich University of the Arts.
Mr Donlevy said: “I am so grateful to my colleagues who are doing this run to show their support for me and my family.
“LCH is such a horrible disease and it is great to know that the money they raise will go towards finding a cure for Chloe and others.” LCH affects only one to two newborn or young infants in a million in the UK.
It occurs most often between the ages of one to three years of age. Some children can have no symptoms at all, while others will have symptoms that are mistaken for injury or other conditions.
To donate, visit www.justgiving.com/fundraising/histio-norfolk10km