April 17 2014 Latest news:
Stephen Pullinger Broads Correspondent
Sunday, December 15, 2013
Tyler Dunnett, seven, has not let a rare neurological disorder stand in the way of his inspirational fund-raising.
The youngster from Freethorpe, near Acle, has Sturge-Weber Syndrome which has left him with learning difficulties and having to battle daily with severe epilepsy and other problems including poor sight.
However, when he heard about people raising money for the Sturge Weber UK support group, he immediately told his mum Kayley Errington: “We can do that too.”
Mrs Errington, 27, of Sutton Crescent, said: “Last year I did a 26 mile sponsored walk with friends from Lowestoft to Great Yarmouth and back and raised £600 but this year Tyler said, ‘why can’t I do it too’, and I said ‘fine’.
“Despite getting out of breath easily due to his condition, he managed to walk from Lowestoft to Pakefield along the beach with 20 friends and raised £732. They were all in fancy dress - Tyler was dressed as an angry pig - and people were donating money along the way.”
Far from stopping there, he has gone on to organise a further four charity fund-raisers this year, including running a sweet stall at Freethorpe Primary School fete, holding cake sales and inviting classmates to contribute money to a coin trail around the school.
Teachers decided to donate money to Tyler instead of sending Christmas cards to pupils and the £36 proceeds, along with £48 raised in his latest cake sale, took him past his £1,000 fund-raising target.
Tyler’s proud father Rikki said despite regular trips to Great Ormond Street Hospital in London, his son was already planning further fundraisers.
Mrs Errington said Tyler’s fertile imagination had come up with the idea of the family dying their hair in rainbow colours and that would be happening next month.
“He has also devised an event for me and my friend to sit in mushy peas,” she said.
Freethorpe Primary’s assistant head Robbie Houghton said they were all “incredibly proud” of Tyler, who has a three-year-old brother Jake.